Department: Commissioner, Precinct 2
Department Head/Elected Official:
Regular or Supplemental RCA: Regular RCA
Type of Request: Resolution
Project ID (if applicable): n/a
Vendor/Entity Legal Name (if applicable): n/a
MWDBE Contracted Goal (if applicable): n/a
MWDBE Current Participation (if applicable): n/a
Justification for 0% MWDBE Participation Goal: N/A - Goal not applicable to request
Request Summary (Agenda Caption):
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Request by the Commissioner of Precinct 2 for approval of a resolution recognizing World Sanfilippo Awareness Day, November 16, 2023.
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Background and Discussion:
This special day of Awareness is in honor of the children around the world living with Sanfilippo Syndrome today, and those who have passed away.
Sanfilippo Syndrome - also known as Mucopolysaccharidosis type III or MPS III - is a terminal, neurodegenerative rare disease. It causes children to lose all the skills they’ve gained, suffer seizures and movement disorders, experience pain and suffering, and then die, often before the second decade of life.
Because of its neurodegenerative nature and multi-system impact, Sanfilippo Syndrome is often called “childhood Alzheimer’s” or “childhood dementia.”
Currently there is no FDA-approved treatment or cure. But there is research happening and there is hope.
Expected Impact:
Alternative Options:
Alignment with Goal(s):
_ Justice and Safety
_ Economic Opportunity
_ Housing
_ Public Health
_ Transportation
_ Flooding
_ Environment
X Governance and Customer Service
Prior Court Action (if any):
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Precinct(s): Precinct 2
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Anticipated Court Date: 11/14/2023
Anticipated Implementation Date (if different from Court date):
Emergency/Disaster Recovery Note: Not an emergency, disaster, or COVID-19 related item
Contact(s) name, title, department: Carla Valenzuela, Policy Manager for Administrative and Internal Affairs
Attachments (if applicable): Resolution